Thursday, February 25, 2021
Monday, February 22, 2021
Moving On
After everything being cancelled because of Covid, we
are making progress on treatment being scheduled. Thursday the 25th I
will have the gold markers and spacing gel put in. This is a relatively simple
surgical procedure, but I will have an IV anesthetic. I am glad that I will not
be awake for this, but neither am I looking forward to this as I am concerned that
it will increase the fogginess that my mind has to deal with. The following
Thursday March 4th is what they call a preliminary radiation consultation.
This is when they will make the mold for holding me in place and make final
decisions regarding the actual radiation therapy. The. radiation therapy will
start sometime in the following week. In preparation for this Thursday, I have to
stop taking vitamins, supplements, and pain medications. This has made life a
little uncomfortable.
I added a new song to be used at my memorial service.
It hasn't been scheduled yet and I hope it won't be for awhile, but I am
planning ahead. It’s sung by a group of five South African men and called ‘I
could sing about heaven for a million years and never get the story told’. It
is kind of upbeat and not real theologically deep, but it makes a powerful
point.
Because my thyroid was totally removed, I must take a pill
to replace stuff the thyroid used to make. To avoid interactions with other stuff,
I have to take it between 1:00 and 2:30 AM. I am fairly good at waking up to
take it, but sometimes it is hard to get back to sleep. Saturday night could
not get back to sleep and my mind went to thinking about many of the times I
failed in the past. Often when I have this sleeplessness, I am able to turn my thoughts
to blessings I'm thankful for, but not that night. I must have dozed off a
little bit because the next thing I remember is being very disturbed about
dying-the uncertainty and the unknown of the process. Of all things, I thought
of the Elvis Presley song ‘Softly as I leave you’. This song recounts a letter written
by a seriously ill man to his wife explaining why he was going to let her sleep
while he died. Softly, I will leave you softly, for my heart would break If
you should wake and see me go. So, I leave you softly, long before you miss me,
long before your arms can beg me stay for one more hour, for one more day. After
all the years I can't bear the tears to fall, so softly, I will leave you
there.
I confess I have a soft spot for Elvis’ ballads, and this
always moves me. Saturday night went beyond just music appreciation. I liked
the sentiment of sparing Karen having to watch me die. But I also thought don’t
I want to hold her hand and talk while I pass on. I was moved to sadness as I
thought about dying alone.
I was really pretty
disturbed and disheartened by this point. I began to pray and thank God for the
reality of forgiveness, confessed my lack of faith, and ended up with the words
of Mark 9:24 “I do
believe, but help me overcome my unbelief!”. Then I fell asleep until we got up at 5:45.
I was well rested now, but still trying to process the
sleeplessness and disturbing thoughts I had during the night. Looking at my
phone, I saw I had a message from our Iranian daughter in London. It was just
a bunch of hearts and Psalm 91. What a great Psalm, as I read it, I enjoyed the
reminder of God’s love, care, and protection. What really struck me though was
verse 5 ’you will not fear the terror of the night nor the arrow that flies by
day’. God used that verse and the whole Psalm to make sense out of the previous
night. I learned or was reminded, that God gives grace and comfort as we need
it. Also, our times are in God’s hands and He will be merciful to both Karen
and I and give grace as it is needed. The key is to remember and trust in His
promises and commit ourselves into His care when life gets really messy or
scary.
Tuesday, February 16, 2021
Memories...
Getting ready for bed last night I ripped off the tape from yesterday's blood test . I commented that between the blood drawing and the EKG that was the most uncomfortable aspect of the day's tests. I then observed that next Thursday would be the next time for a hole in my arm for anesthetic and then another puncture on my body in a less comfortable and public place to insert the gold markers and the SpaceOar.
Karen kissed me and said she really admired me for the
way I was responding to all the pain discomfort and indignities I was going
through. That really helped a lot. Words of affirmation and touch are my two
biggest ‘love languages’. But I also thought that while for decades I have
talked about the sovereignty of God, it is in circumstances like this, that belief
becomes precious. Especially as I know it is not a distant despot controlling
things according to his own directionless whims. Instead, it is my loving,
heavenly father who created me, redeemed me, controls my destiny, and does this
all as an expression of His love and holiness to accomplish my good and His glory.
For Christmas I gave each of my five grandsons the
gift of a day with me where I would teach them to build a birdhouse. At the
time I was looking for some creative alternative to just spending money on
another toy that would be forgotten in a week or two.
So far I have worked with two of the boys. While I
have learned the harsh lesson that I no longer can work with the degree of
precision of the days of making missile parts and jewelry, I have had a really
good time. I have come to realize I am not just making birdhouses, but memories
for my grandsons. I'm teaching them about tools and letting them do the work. I
am talking with them, spending time just the two of us, and affirming them as
they are creating something. When you have the reminder of your mortality in
two cancers and their ongoing impact on your life it is a little easier to
think in terms of, “This might be the last time I/we do...”, and to want to
make it a good memory for the other involved. But I am thinking what a great
thing it would be if we all viewed even our daily, mundane activities as an
opportunity to make good memories for those we love.
Monday, February 8, 2021
FREE AT LAST...
Our covid isolation has been over for awhile but we
were still taking it easy so that we can recover our strength before going out
in public again. Last Sunday was going to be the big day returning to church.
The only glitch was that early Sunday morning we had about 7 inches of snow to
go on top of the 30 inches that we already had. So, the service was cancelled. I
was also scheduled to speak at a church via Zoom. Fortunately, the church was
in California, so weather was not a problem, unfortunately we weren't there but
still in snowy Bethlehem. Zoom solved the problem and we had a really great
time with Rebuild Fellowship.
By the time the service was over it had stopped
snowing and so we were just getting ready to change into outdoor clothes to go
out and shovel and snow blow. We looked out the window and found that neighbors
had done all of our sidewalks and one had even come up into the yard to shovel
the little path that we had between our door and driveway. If I'm honest I
would say that I got teary eyed just thinking how good God was in giving us neighbors
who cared for us like that. Then today another friend whose family we regularly
got together with stopped by with two bags of fruit to help us get our strength
back. He mentioned that when he got homesick for his country for some reason,
he would think of me and it would help. What a privilege and blessing to be in
relationships like this. And then I noticed another friend had dropped off a
big container of meat, vegetables, and rice and a bigger container of what she
knew is one of my favorite treats - Turkish rice pudding. We so long to begin
to spend face to face time with our friends again. I am anticipating many more
years of life, but I can truly say that if it was to end abruptly I would have
no complaints as God has made my life so full and blessed us in so many ways.
Of course the greatest blessing is the certain hope that this life is not all
there is. There is forgiveness of sin, eternal life in His presence and joys
unspeakable to experience.
My son made the observation that since we have had
covid and recovered from it that we don't have to worry about being infected by
contact from anyone else nor are we able to infect any other people. This was
really freeing. While we will still exercise reasonable caution and
consideration for others, it does seem that it can open up having contacts with
our friends again. I am looking forward to being able to spend regular time with
friends who have just been email or text contacts for what seems like ages.
The procedure that was cancelled because of my covid has
been rescheduled for February 25. Fortunately, that means the whole process may
only be pushed back by two weeks. So, by May I should be all finished with the
radiation therapy. At least during March and April except for the few side
effects like tiredness, nausea, and a few other things we will be able to
function like normal. At the end of the radiation, I am due for another Lupron shot
which is part of the androgen suppression therapy. This is theoretically to
weaken the cancer to make it more susceptible to the radiation. It has a lot of
bad side effects many of which I am experiencing. Unless I am given some really
compelling arguments, I am going to discontinue those shots and not get the
next one.
I am all in favor of medical technology and am so
thankful for the treatments that I have received. What we are wrestling with is
the idea of trusting in the Lord and not statistics or probabilities and balancing
the benefits of treatments versus the problems and limitations of side effects
from it.
Wednesday, February 3, 2021
A Clearer Perspective - thanks to all who responded and prayed
Well,
our little snowstorm of three days dropped about 31 inches in our area. After
writing yesterday's post, I got a phone call from my daughter. She observed
that I seemed to be feeling a little down and she said, ‘I tried to think about
what you would tell someone else who was feeling the way you were feeling’. Then
she said, ‘I realized you would tell them to focus on the things they still
could do and not on the things that they didn't have’. So, she used my own lessons
to her to encourage me on my outlook for the day. It is nice to have children who
are so exceptionally wise and caring. I also appreciated a number of other
emails from friends who encouraged me to back off, realize I am not
indestructible or indispensable, and to allow others to enjoy blessing us. Thanks
for being willing to challenge me. We were close to running out of bread and a neighbor just dropped by with a loaf of homemade bread she had made for us. It is so comforting to see how God supplies for us.
After
all the days of inactivity this was just the kind of therapy that I needed. My
lungs felt great, I was pleasantly exhausted, and enjoyed going inside to rest. It
was also nice seeing others help and give of themselves for us. An added little
bonus was still being able to help someone else. I had planned to continue my
recovery therapy by having a steak for dinner. Someone gifted us with a nice
box of them and it seemed like a good time to break one out. Unfortunately I
kept forgetting to defrost one. Ultimately Karen made a big pot of curried
squash soup which turned out to be just right.
Monday, February 1, 2021
One Quick Update
Well
I am officially past the time where I have to be isolated because of covid. I
would like to say that I am full of vim and vigor and back to normal. However,
that is not the case I am still very tired. During the one week I lost over 15
pounds and I find myself still sleeping quite a bit. The fog is still there and
while I might have good intentions of doing things, carrying them out is very slow.
I
find myself very frustrated, so far we've gotten over 18 inches of snow and I am
not able to go out and play in it with my snow blower. Under normal conditions
I would have been out twice already and been up and down and around our block. It
has been encouraging though, one neighbor told Karen and I not to worry about
clearing snow at all and they would take care of everything for us. Another
neighbor noticed Karen outside playing in the snow and sent me a note asking if
everything was OK because he hadn't seen me. They have offered to help in any
way including bringing meals over to us. It is hard being on the receiving end of
kindnesses from others. We are the ones who like to do things to help others and
now we find or at least I find myself greatly limited. It is probably an
important lesson for me to learn. I am not sure what the lesson is though.
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